One of my digital friends and fellow CT members sadly lost her daughter to Rett's Syndrome. She has started a blog hop in order to reach as many people as possible to spread awareness about Rett Syndrome.
During the hop, you will see some Disney themed projects created by some very talented ladies. You will also find some wonderful goodies (freebies) along the way created by some of my other friends..... And information about Rett Syndrome will be shared
If you have just stopped by my blog to visit with me, thank you and welcome, but please start at the beginning of the hop with our
Hostess, Robin from Create-A-Latte. (We would not want you to miss any of these wonderful projects.)
So, grab yourself a Latte', sit back and hop along with us as we share our projects with you.
Background Information -
Rett Syndrome strikes without warning. A girl with Rett Syndrome usually starts out as a happy and healthy baby. Then something goes terribly wrong. She loses the ability to speak, she can't use her hands to play with toys, or to even feed herself, and she may lose the ability to walk.
Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.
Rett Syndrome is caused by a mutation of the MECP2 gene on the X chromosome.
Rett Syndrome is found in all racial and ethnic groups throughout the world, and in every socioeconomic class.
Rett Syndrome affects 1 in 15,000 female births.
*Symptoms of Rett Syndrome...
Rett Syndrome is a genetic neurological disorder that affects girls between 6 and 18 months of age. This regressive disease leads to lifelong handicaps, including loss of speech and voluntary muscle control, and is often misdiagnosed as Cerebral Palsy or Autism. Symptoms range from mild to severe, and almost always include...
*Developmental Regression or Plateau
*Near constant hand clasping or wringing
*Severe communication impairment
*Breathing problems
*Digestive issues
*Floppy arms and legs
*If able to walk, then with a shaky, unsteady gait, or toe-walking. But most do end up using a wheelchair for the most part.
*Scoliosis
*Seizures
*Slowing head growth
*Abnormal sleep patterns
*Transient loss of social engagement
*Poor circulation that can lead to cold and bluish arms and legs
*Anxiety
Many individuals with Rett Syndrome live well into adulthood, although there are some that do not get that chance and end up losing their battle to Rett Syndrome at a very early age.
Most people including Doctors are not aware of Rett Syndrome, so, please help me get the word out about Rett Syndrome and hopefully the more that know the faster we can help in finding a cure.
Now, are you ready for some blog candy??? We have a several wonderful and generous sponsors today...
1. Lucy Kelleher with Close to My Heart - $10 gift certificate for Close to My Heart products with Lucy
Close To My Heart -
lucyk.ctmh.com
2. Dee's Delights Store - http://dees-deelights.com/deestore/
3. Heather Stafford with...Gemini Red Creations
A floating locket and your choice of two floating charms
http://www.geminiredcreations.com/shop/floating-lockets/
4. Robin Lane with Create-A-Latte
A Collection of Snap Products by Simple Stories. Everything you need to put together your Disney memories. (The kit comes with an Album, a pack of Insta Pocket Pages, "Say Cheese" Journal Kit, and the "Say Cheese" Snap Pack.)
Here is a layout about this disease. (Created by Maureen)
Here is the freebie that I created for this blog hop.
It coordinates to Dee's Deelights Fairy Tales line of products...
Here is a preview of that kit...
Available at:
My Memories Store - https://www.mymemories.com/store/designers/Dees-Deelights
Kit: https://www.mymemories.com/store/display_product_page?id=DDDR-CP-1409-71147
And here is the link to your freebie-- a set of 4 borders (12 by 12 inches) and 1 clustered frame.
Be sure to head on over to....
10. Scrappin Madge ~ http://www.thescrappinlounge.com/
for your next stop and see her wonderful project that she has made to share with you today.
If you get lost along the way here is the entire line up for today's Blog Hop.
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